Greater NHS support is needed for people chronically ill for months with Covid-19 symptoms, experts have told BBC Radio 4's File on 4.
The Royal College of GPs is calling for a national network of "post-Covid" clinics to help such people.
But less than 12% of 86 NHS care commissioning groups asked by the BBC said they were running such services.
NHS England said it was "rapidly expanding new and strengthened rehab centres".
Tim Spector, professor of genetic epidemiology at King's College London and leader of the Covid Symptom Study app, said around 300,000 people in the UK have reported symptoms lasting for more than a month – so called "long Covid".
He added that data from the app showed around 60,000 people have been ill for more than three months.
However, many of these people may not have been tested for Covid.
'I just want my life back'
The government moved away from community testing on 12 March, instead only testing those admitted to hospital.
That meant people who recovered from suspected coronavirus at home were unable to access tests.
Elly MacDonald, 37, from Surbiton, was training for the London Marathon when she first developed what she believes were Covid symptoms on 21 March.
More than five months on, she still suffers from breathlessness and extreme fatigue, but has not received a positive test result – because community testing was re-introduced too late for it to detect her illness.
She changed her GP practice after initially feeling she was not being helped,
Elly said: "Just knowing that I actually have people who are taking me seriously – that's been very important for my recovery. I just want my life back."
Paul Garner, a professor at the Liverpool School of Tropical Medicine, has had long Covid since 19 March, and feels some patients are not being believed by healthcare professionals.
"I think the proof is in the symptoms and the stage that we're at in the epidemic," he said.
"We need sensible guidelines that really help people. The government is simply not doing enough with the existing medical expertise. It needs to be commandeered and brought together to work together."
File on 4 asked all 212 Clinical Commissioning Groups (CCGs) and health boards across the UK whether they had set up post-Covid clinics for patients who were not admitted to hospital with the virus – but did not necessarily receive a positive test result.
Of the 86 that responded, 10 said they were already running such facilities. A further 16 said they were planning or redesigning services.
Many patients will be seen by their GP, or existing services.
Martin Marshall, GP and chair of the Royal College of GPs, said: "Without doubt, we know that there's going to be a growing number of people who have significant and worrying symptoms of long Covid.
"A small proportion, but in total a large number, will require specialist advice.
"So we really do need to see a growing number of post-Covid clinics being established."